Our yearlong fellowship brings together a select group of young adults with IBD from around the world. Our fellows produce monthly content, convene virtually to hear from influential speakers, engage in speaking opportunities and receive a stipend for their participation. Since its launch in 2019, our fellowship has included representation from across the U.S., India, Ethiopia, the United Kingdom, Dubai, Greece, Malaysia, and Canada!
Work beyond our fellowship:
Cory Lane (left) watches as Phil Flory removes Sneha Dave’s PICC line in December 2012 at Riley Hospital for Children in Indianapolis, Indiana. Flory was a nurse for both Cory and Sneha at different times.
Virtual peer-support meetings for young adults with IBD
Diversifying IBD Patient Engagement: We believe it is important to include a broader range of voices and patient perspectives in IBD work to promote better outcomes for all patients, not just those historically represented in advocacy organizations. This list is intended to amplify the voices of patient advocates (current/past participants in the CCYAN Fellowship Program) who hold a range of identities/backgrounds.
Community Discussions & Evidence Generation
The Roundtable on Young Adults with IBD - a yearlong learning community comprised of monthly discussions between patients and providers
IBD Medical Student Scholars - a unique program for medical students interested in gastroenterology and internal medicine to learn about the global challenges and needs of adolescents and young adults with IBD
Our Origins:
The CCYAN originated as a newsletter called the Crohn’s and Colitis Teen Times. This newsletter was created in 2012 by Cory Lane and Sneha Dave, two teenagers with IBD. While these newsletters were first distributed within the state of Indiana, they would eventually be distributed across the U.S. and the world.
In May 2013, Cory passed away from Crohn’s disease and osteosarcoma. Together, Sneha and Cory envisioned that no young adult with IBD would feel isolated in their journey and his legacy has remained through the evolution of the Crohn’s and Colitis Teen Times as the Crohn’s and Colitis Young Adults Network.
Click the image above to view the first original issue of the Crohn’s and Colitis Teen Times.
Click the image above to view the second issue of the Crohn’s and Colitis Teen Times.
You can find more information on our parent organization, Generation Patient, here. You can also click here to make a donation and help support our work.
Transparency: We are committed to transparency and independence. Generation Patient and CCYAN do not accept pharmaceutical or insurance industry funding at a time when many struggle with access in the U.S. and internationally. As the next generation of patient advocates, we value our independence and hope that you might consider a contribution.