Reactions and Opinions about IBD: Addressing Misconceptions
By Mahder Ayalew from Ethiopia
It can be frustrating when people don't understand or believe in the reality of my condition. I have encountered various reactions and opinions, some of which are misguided or ignorant. Being told that my illness is some kind of satanic problem is not only offensive but also shows a lack of understanding about the nature of inflammatory bowel disease (IBD). IBD is a chronic autoimmune condition that has nothing to do with supernatural forces or spirits. It is a real, physiological condition that requires medical attention.
Others may suggest that my condition is all in my head and that I should simply think positively or not dwell on it too much. While a positive mindset can certainly help in coping with any chronic illness, it is important to recognize that IBD is a complex and unpredictable condition. It is not something that can be cured by positive thinking alone. Medical treatment and management are crucial for maintaining my health and preventing flare-ups.
There are also those who believe that there must be a definite cure for my condition. While medical research is constantly advancing, there is currently no known cure for IBD. It is a chronic condition that requires lifelong management. Statements suggesting otherwise can be disheartening, as they overlook the reality and challenges of living with a chronic illness.
Being told that I am unfortunate because of my condition can also be disheartening. While I understand that IBD has its challenges and affects my daily life, it does not define me as a person, nor does it lessen my worth or happiness. I choose to focus on the things I can control and find ways to lead a fulfilling life despite the limitations imposed by my illness.
There are those who express concern about the long-term effects of medication and the idea of relying on medication at a young age. It is understandable that people may worry about the potential side effects of medication and the impact it may have on my overall health. However, in consultation with my healthcare team, I have made informed decisions about my treatment plan. I understand that medication is necessary to manage my condition and prevent further complications. It is essential to prioritize my health and well-being above any concerns or judgment from others.
Living with IBD has taught me resilience, empathy, and the importance of self-care. While I have encountered different reactions and opinions about my illness, I have learned not to let them define me or affect my journey towards maintaining good mental and physical health. I choose to focus on finding solutions that work best for me and living a fulfilling life despite the challenges posed by my condition.
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